The Sudden Unexpected Death Data Enhancement and Awareness Act  

Congressman Pallone (2nd from left), Laura Crandall (3rd from right) and others attend the President's signing of H.R. 669.

Lead U.S. House of Representative Sponsors

Congressman Frank Pallone, Jr. (D-NJ)
Congressman Pete King

Lead Senate Sponsors

Sherrod Brown (D-OH)
Kelly A. Ayotte (R-NH)

Useful Links

-Read the Law 
-Bill's process in Congress via GovTrack
-Congressman Pallone's Press Release (Dec 2014)
-SUDC Foundation's Press Release (Dec 2014)

The Sudden Unexpected Death Data Enhancement and Awareness Act (H.R. 669) was passed unanimously in the Senate and the U.S. House of Representatives and signed into law (as above) by President Obama on December 18, 2014

The Act was originally introduced into Congress in 2009 by the late Senator Lautenberg (D-NJ) and Congressman Pallone (D-NJ). Although the bill had bipartisan support, the bill had no action in committee during the 111th or 112th legislative sessions. It was then introduced into the 113th Congress in February of 2013 for a third time by Senator Lautenberg and Congressman Pallone.

With the passing of Senator Lautenberg in June of 2013, the bill saw no movement in the Senate but attained a hearing in the House's E&C subcommittee on health in November 2013 and was passed by the House via unanimous consent in September of 2014. In July of 2014, new Senate champions of the bill Senator Brown (D-OH) and Senator Ayotte (R-NH) carried on the work of Senator Lautenberg. The Senate HELP committee amended the bill in the fall of 2014, passed it out of committee where it was also passed by unanimous consent in the Senate. It then returned to the House to be approved with the Senate amendments to HR669 and was passed again by the full House on December 4, 2014. As above, the bill completed its successful legislative process and was then signed into law on December 18, 2014.

Specifically,The Sudden Unexpected Death Data Enhancement and Awareness Act will build upon existing activities at the Center for Disease Control and Prevention (CDC) to improve the quality and consistency of data collected during the death scene investigations and autopsies to better inform prevention and intervention efforts related to stillbirths, Sudden Unexpected Infant Deaths (SUID) and Sudden unexplained Death In Childhood (SUDC).  This collaboration with the states to enhance current methods of data collection across existing surveillance systems will enable doctors and researchers to better track and prevent these tragic losses. In addition, the Act requires the Secretary of the Department of Health and Human Services (HHS) to disseminate information related to stillbirths, SUID and SUDC to educate the public, health care providers, and other stakeholders involved in investigating the deaths of infants and young children so that everyone is on the same page.

Director Laura Crandall Testifies Before Congress
On Wednesday, November 20, 2013, Laura Crandall was invited to give testimony on this bill before the Committee on Energy and Commerce Subcommittee on Health. Click the image to watch her testimony.
US House of Representatives Votes to Pass HR669
On September 9, 2014, the US House of Representatives voted to pass H.R.669! Watch the video of the vote below.
Organizations who endorsed the Sudden Unexpected Death Data Enhancement and Awareness Act include:
American Academy of Pediatrics
American Osteopathic Association
Association of Maternal & Child Health Programs
Baby Butterfly Foundation for SIDS Outreach
Charlie’s Kids Foundation
Child Death, Near Death and Stillbirth Commission of Delaware
Child Injury Prevention Alliance
Children’s Hospital Association
CJ Foundation for SIDS
Consortium of Forensic Science Organizations
Cribs for Kids
Danny Did Foundation
Delaware Child Death, Near Death, and Stillbirth Commission
First Candle
International Association of Coroners and Medical Examiners
Juvenile Products Manufacturers Association (JPMA)
Kids In Danger
Maternity Care Coalition
MISS Foundation
My Baby Angel Foundation
National Association of Medical Examiners
National Association of Police Organizations, Inc.
Ohio Hospital Association
Ohio Public Health Association
Safe Kids Worldwide
Safe States Alliance
SIDS Educational Services Inc.
Society of Medicolegal Death Investigators
Sudden Unexplained Death in Childhood Foundation
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