SUDC Insights

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SUDC Insights

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SUDC Insights is the official blog of the SUDC Foundation which shares and discusses issues important to the understanding and the ultimate prevention of SUDC. If you have questions or issues you would like to see addressed in SUDC Insights, please let us know at sudcinsights@sudc.org.

Being a Critical Consumer of Medical Research: Understanding Association Versus Causation

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You hear the rooster crow and then you see the sun rise.

The next day, you hear the rooster crow again and the sun rises again.

Days go by and this happens again and again. A young child may assume that the rooster is causing the sun to rise. As adults, and savvy students of science, we know better.

The rooster crowing did not cause the sun to rise.

The rooster crowing is associated with the sun rising.

 

This is an old and often cited story to illustrate the difference between association and causation. And it’s a crucial topic to revisit when reviewing new research.

Caring for the SUDC Family: Medical and Bereavement Information for the Clinicians' Consideration

When a child dies unexpectedly, a family may feel a flood of emotions, including guilt, anger and lack of control. The clinician’s role is to offer stable support, information and compassionate care.  In order to provide the most appropriate care for families in these situations, it is necessary to understand the complexities of the grief and trauma response and to recognize that the families’ needs will change over time.

 

The following suggestions include considerations for both the medical and psychosocial needs of the primary family members. These provide some general guidelines and recommendations to consider, recognizing that they will need to be tailored for each individual family based on the specific circumstances of their child’s death, significant findings from the death investigation, the child/family medical history, the clinical evaluations of family members and their family circumstances.

Spreading Scarlett's Sunshine

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Last fall, a little girl with big, blue eyes, a smile that could light up a room and a personality to match her name left her mark on history when Scarlett’s Sunshine on Sudden Unexpected Death Act was introduced into Congress. And last week, her spirit toddled back through the halls of the Capitol when it was reintroduced to combat sudden, unexpected infant and child deaths.

Blogs: Providing Hope, Inspiration & Awareness for SUDC

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Throughout SUDC Awareness Month 2019, we have seen many ways that committed individuals educate and make visible the public health issues of SUDC. The launch of our Foundation blog, SUDC Insights, this month, in fact, has been inspired by the eloquent words of those touched by SUDC who have used blogging as a window into their grief, hope and survival. Sharing their experiences with such eloquence, vulnerability and honesty educates the reader in profound ways.

Understanding the Incidence of Sudden Unexplained Death In Child (SUDC)

Understanding the incidence (aka frequency) is dependent on accurate surveillance. However, due to the variations in death investigation practices across the United States and in other countries, we are limited in our ability to understand the true magnitude of SUDC. At this time, we have accurate surveillance of deaths finalized without explanation, but we can not estimate the number of deaths that are finalized with a specific cause of death that may be highly speculative or inaccurate. 

Table 1. R96-99 By Age of 1-18yo, 1999-2017 (Unexplained Sudden Child Deaths and Undetermined Deaths)

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Centers for Disease Control and Prevention, National Center for Health Statistics. Multiple Cause of Death 1999-2017 on CDC WONDER Online Database, released December, 2018. Data are from the Multiple Cause of Death Files, 1999-2017, as compiled from data provided by the 57 vital statistics jurisdictions through the Vital Statistics Cooperative Program. Accessed at http://wonder.cdc.gov/mcd-icd10.html on Feb 13, 2019 7:05:28 PM 

The Story of SUDC

One of the most common questions when people first hear the term SUDC is “What is that?”  The second usually is “Is this something new?”

Sudden Unexplained Death in Childhood (SUDC) is a category of death in children between the ages of 1 and 18 that remains unexplained after a thorough investigation, including an autopsy. A medical examiner or coroner could rule a child’s death SUDC when s/he completes a thorough evaluation and finds no other cause of death.

Welcome to SUDC Insights!

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March is a busy month at the SUDC Foundation – honoring SUDC Awareness Month and launching SUDC Insights, the new blog of the SUDC Foundation! SUDC Insights will provide an outlet to provide in-depth and more current, accurate information on SUDC and the work of the SUDC Foundation. We will provide "insight" into promoting awareness, advocating for research, supporting those affected and striving for a world free of SUDC.

If you have questions or something you'd like "insight" into, please contact us at sudcinsights@sudc.org.

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