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Laura Gould Crandall, PT, MA is a research scientist in the Department of Neurology at the NYU School of Medicine on the SUDC Registry and Research Collaborative. She is a Co-founder, President and volunteer Executive Director of the SUDC Foundation. Laura is a licensed Physical Therapist in New Jersey and New York. She earned her undergraduate and postgraduate degrees from New York University in 1990 and 1996.
In 1997, her first child, Maria, succumbed to Sudden Unexplained Death in Childhood (SUDC) at the age of 15 months. Through the death investigation of Maria, Laura was convinced that changes in the system could and should be achieved. She advocated for legisaltion in her home state of New Jersey and then federally. She initiated child death investigation legislation in New Jersey, which became law in 2000. A subsequent New Jersey law regarding research passed in 2006. In 2014, after six years of advocacy, Laura witnessed federal legislation called “The Sudden Unexpected Death Data Enhancement and Awareness Act” being signed into law by President Obama. This was the first time SUDC was recognized by the U.S. federal government. At the SUDC Foundation, Laura strives to support families by upholding the mission of being the centralized resource for SUDC information, support, advocacy and crucial research.
In 2007, Laura was honored as Glamour magazine’s “Woman of Your Year”, and in 2015, she was the recipient of the “Portrait of Courage” award from the National Organization of Rare Disorders (NORD). Laura is a member of the National Association of Medical Examiners, , an executive board member of the North American SUDEP Registry (NASR), executive officer of the (Federal) Organization for Scientific Area Committees (OSAC), subcommittee for medicolegal death investigation, and was a board member of the National Forensic Science Commission’s subcommittee on medicolegal death investigation and advisory member of the National Sudden Death In the Young (SDY) registry.
Orrin Devinsky, MD, Founding Member
Chelsea Hilbert, LCSW