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SUDC Insights

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SUDC Insights is the official blog of the SUDC Foundation which shares and discusses issues important to the understanding and the ultimate prevention of SUDC. If you have questions or issues you would like to see addressed in SUDC Insights, please let us know at sudcinsights@sudc.org.

Understanding Genetics Pats 3: Not All Genetic Testing is the Same – Understanding TPS vs WES vs WGS

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All "genetic testing" is not created equal. Genetic tests, just like the multitude of medical tests your physician may choose to order when you are sick, have their advantages and disadvantages as well as their indications and contraindications. If someone says. "I did genetic testing and it did not identify the cause of the death", it doesn't really convey valuable information or guidance to the receiver of that information. 

Celebrating the Memory of a Child on Special Days

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When someone experiences a loss, celebrations and special days take on a different feel. Whether you are supporting someone who has lost a child or experiencing the loss yourself, dealing with events like anniversaries and birthdays can be difficult. These special days mean something different for everyone. Sometimes they are painful, sometimes joyous, or they may be something you want to completely avoid. What we can tell you is that these special dates will always bring reminders of the precious child that was lost. 

The SUDC Foundation Family Retreat – from an SUDC Parent and Board Member’s Perspective

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We live in St Paul, Minnesota, with our 7-year-old daughter, Elianna. We had never heard of SUDC before November 2016 when we lost our 3-year-old daughter, Vivienne, suddenly and without explanation. Thankfully, several people reached out to us pointing us to the SUDC Foundation. We attended the SUDC Foundation’s first-ever Family Retreat in Naples, Florida, last year, where we found great comfort in spending time with other families like ours. 

Parenting after Loss-Perspective of a Mother and Pediatrician

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When my son Conor died suddenly and unexpectedly at the age of 17 months, my world was shattered- both as a mother and as a pediatrician. I was forever changed. My daughter was 2 at the time and I soon realized that parenting was a new journey. There was the added complexity of being a pediatrician and trying to balance what I knew from my training and experience with the gaping unknown. There was nothing in my pediatric training or experience that prepared me to deal with the loss of my son and how to parent my surviving and subsequent children. I realized that just as I could not be the same parent I was, the medical care for my children would not follow the same path. The following is my perspective on this new parenting journey, from the eyes of a mother and physician.

Honoring our Dads: Insight into the Grief of Fathers after SUDC

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Grief is a natural process of emotions that occurs when someone dies. Grief integrates into normal routines at variable time frames for each person. It can be an intense, lonely, and personal experience. No two people, regardless of gender, will experience the death of a child the same way. A sudden, unexpected death of a child goes against the natural order of life and the death is incomprehensible.

And while significant research has pursued a better understanding of a Mother’s grief, far less has been achieved to better comprehend the grief of Fathers.  In fact, three times the number of published references in the US National Library of Medicine focus on maternal grief compared to the grief of Fathers. So as Father’s Day approaches, and we pause to celebrate our Dads, let’s shine a light on those that are grieving and how we can best support them.

When Your Sister or Brother Dies- Sibling Bereavement Support Suggestions Part I- Immediate Care

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Losing a child is one of the most horrible situations a parent has to face, but that does not lessen the significant effect the loss has on their surviving siblings. It is not only the parents that grieve. A living brother or sister also loses a part of themselves. They lose the laughter echoing in the family room or sharing the mashed potatoes at the kitchen table. They lose a partner in their video games or a sneaky little shadow following them around the playground. A sibling’s grief is real, emotionally significant and worthy of attention.

How to Secure Event Sponsorship

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The SUDC Foundation currently receives no public funding. The work of fulfilling our mission, including no-cost services to families and funding research,  are due to the generosity of private donations- 85% of which comes directly from fundraising events. Because of this, fundraising events are essential to effectiveness of the Foundation.  Growing larger events with increased revenue can be aided by securing event sponsorship's- which can sometimes be tricky to navigate.

We are grateful to all of the dedicated supporters who choose to host an event on behalf of the foundation and hope that the ideas expressed in this article will provide guidance as you navigate the supporter/sponsor relationship.

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