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SUDC Insights

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SUDC Insights is the official blog of the SUDC Foundation which shares and discusses issues important to the understanding and the ultimate prevention of SUDC. If you have questions or issues you would like to see addressed in SUDC Insights, please let us know at sudcinsights@sudc.org.

Heather Maher
Heather Maher's Article

Insight from the 2019 Annual Meeting of the National Association of Medical Examiners

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For over 15 years, the SUDC Foundation hasn’t missed the opportunity to attend the National Association of Medical Examiner’s (NAME) meeting. In order to achieve our mission to support those who have suffered the sudden, unexpected death of a child, we first need to connect with them. Medical examiners play a critical role by referring them to us. While pediatric and other medical professionals may be in contact with these bereaved families after the death of their child, medical examiners and coroners most definitely will be. Equally important, we rely on medical examiners and coroners to complete comprehensive investigations and gather crucial data to identify the most accurate causes of death for these children.

Understanding Genetics Part 3: Not All Genetic Testing is the Same – Understanding TSP, WES, and WGS

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All "genetic testing" is not created equal. Genetic tests, just like the multitude of medical tests your physician may choose to order when you are sick, have their advantages and disadvantages as well as their indications and contraindications. If someone says. "I did genetic testing and it did not identify the cause of the death", it doesn't really convey valuable information or guidance to the receiver of that information. 

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