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SUDC Insights

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SUDC Insights is the official blog of the SUDC Foundation which shares and discusses issues important to the understanding and the ultimate prevention of SUDC. If you have questions or issues you would like to see addressed in SUDC Insights, please let us know at sudcinsights@sudc.org.

The SUDC Foundation and the SUDCRRC

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At the SUDC Foundation, we often address questions, from the families we serve in particular, on the relationship between the SUDC Foundation and the SUDC Registry and Research Collaborative (SUDCRRC). While the two entities frequently partner together to foster high-quality research and to promote family bereavement support throughout research participation and beyond, they are each their own independent entities.

Understanding Genetics Part 3: Not All Genetic Testing is the Same – Understanding TSP, WES, and WGS

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All "genetic testing" is not created equal. Genetic tests, just like the multitude of medical tests your physician may choose to order when you are sick, have their advantages and disadvantages as well as their indications and contraindications. If someone says. "I did genetic testing and it did not identify the cause of the death", it doesn't really convey valuable information or guidance to the receiver of that information. 

Being a Critical Consumer of Medical Research: Understanding Association Versus Causation

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You hear the rooster crow and then you see the sun rise. The next day, you hear the rooster crow again and the sun rises again. Days go by and this happens again and again. A young child may assume that the rooster is causing the sun to rise. As adults, and savvy students of science, we know better. The rooster crowing did not cause the sun to rise. The rooster crowing is associated with the sun rising. This is an old and often cited story to illustrate the difference between association and causation. And it’s a crucial topic to revisit when reviewing new research.

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