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SUDC Insights

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SUDC Insights is the official blog of the SUDC Foundation which shares and discusses issues important to the understanding and the ultimate prevention of SUDC. If you have questions or issues you would like to see addressed in SUDC Insights, please let us know at sudcinsights@sudc.org.

Fundraiser Host Spotlight- Meet Grandparent Jean Sibley

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We are thankful for our many families, friends and supporters who want to raise awareness and funds in memory of a beloved child by hosting a fundraiser to benefit the SUDC Foundation. In this edition of SUDC Insights, we would like to share our recent conversation we had with Jean Sibley, a SUDC grandparent who hosts Reading for Magnolia, an annual event held in memory of her granddaughter, Magnolia. 

The SUDC Foundation and the SUDCRRC

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At the SUDC Foundation, we often address questions, from the families we serve in particular, on the relationship between the SUDC Foundation and the SUDC Registry and Research Collaborative (SUDCRRC). While the two entities frequently partner together to foster high-quality research and to promote family bereavement support throughout research participation and beyond, they are each their own independent entities.

Understanding "Cause" and "Manner" of Death

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Among other functions, the medical examiner or coroner is responsible for investigating sudden and unexpected deaths and completing a medicolegal death investigation. Part of that investigation will include completing a death certificate which includes information about the person who died as well as the investigation’s determined “cause” and "manner” of death for that individual. 

The SUDC Foundation Family Retreat – from an SUDC Parent and Board Member’s Perspective

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We live in St Paul, Minnesota, with our 7-year-old daughter, Elianna. We had never heard of SUDC before November 2016 when we lost our 3-year-old daughter, Vivienne, suddenly and without explanation. Thankfully, several people reached out to us pointing us to the SUDC Foundation. We attended the SUDC Foundation’s first-ever Family Retreat in Naples, Florida, last year, where we found great comfort in spending time with other families like ours. 

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