Securing and Banking DNA after SUDC
The SUDC Foundation retains a family advocate on staff to help you with this entire process if you choose to pursue DNA banking. This is not something you have to do on your own. However, there is a small time commitment of approximately 4 to 6 weeks in which you will need to be available for communication with the Foundation to complete the process.
If available to you, the SUDC Foundation encourages the banking of your child's DNA to provide you with options to pursue more information about your child's death. As clinical testing advances and research options improve, you may want to access these opportunities. Securing a genetic specimen (DNA) from your child may provide:
- the opportunity for genetic testing to uncover specific cause of death and appropriate testing of family
- the opportunity for genetic testing to provide negative results - which may assist in decreasing some anxiety
- the opportunity for storing a genetic specimen -banking DNA
- Instill hope for cases that currently defy understanding
- Allow for participation in present or future research
- Allow families to benefit from potential benefit of future discoveries
Knowing how much DNA is available and the quality of it, will allow you to make informed decisions on its use.