Introduction to Family Services

Step 1: Review our Community Commitment and Guidelines for Participation in Family Services

COMMUNITY COMMITMENT AND GUIDELINES FOR PARTICIPATION IN THE SUDC FOUNDATION'S FAMILY SERVICES (LAST MODIFIED JUNE 2021)

  • The SUDC Foundation’s Family Services programming welcomes each participant as a member of our SUDC Community. Receiving, continuing, or discontinuing the services provided by the SUDC Foundation is a decision made by each registered member.
  • The SUDC Foundation expects each participant to be kind, collaborative and adhere to specific guidelines as outlined below. Anyone who is unable to do so will no longer be eligible to receive the services offered by the SUDC Foundation and will be removed as their actions risk the success and support of the community overall.
  • The SUDC Family community understands that the success of our growing and international membership is dependent on collaborative and focused efforts to support one another and the SUDC Foundation’s 5-year strategic plan to achieve our mission. Members agree we are strongest when we stand and work together. This does not mean that members will always agree with one another or the Foundation, but members do agree to work together on the agreed upon strategic plan set by our community of stakeholders and board of directors.
  • Many of our families decide to participate in advocacy efforts to spread SUDC awareness. The decision to do so is completely voluntary. However, if you would like to participate in advocacy efforts or media outreach (interviews, etc.), we expect that you proactively work with the SUDC Foundation prior to doing so and you consider application to the SUDC Foundation’s Ambassador Program. This ensures our efforts are collaborative, consistent, efficient, include the most accurate and current information on SUDC and in line with our strategic initiatives. The ongoing education and training of the Ambassador Program, and its resources, empowers SUDC advocates to promote accurate awareness of SUDC and support the mission of the SUDC Foundation.
  • Privacy is very important to us. The SUDC Foundation does not share personal information with any companies, agencies, or organizations. If you participate in any of our services, you agree that you will not share any personal information, information provided by the SUDC Foundation, emails or images outside the service for which it is intended to be used.
  • The SUDC Foundation will share information with proper agencies for any person who reveals that he or she wants to injure him/herself or others.
  • The SUDC Foundation reserves the right to refuse services or to amend any of the Community Commitment and Guidelines on an as-needed basis. This consent form does not constitute a binding contract for services.
  • If you have any issues, concerns or something you would like to discuss in relation to any services listed on this form, or have new service ideas, please contact us by phone toll free in the U.S. 800-620-SUDC (7832) or by email at [email protected].
 

ONLINE GROUPS (EMAIL, FACEBOOK, AND THE SUDC NETWORK)

  • Members understand that the online support communities are moderated by the SUDC Foundation staff, who monitor and provide outreach to members in need and make determinations in regard to needed services and addressing issues or questions that arise in support of the SUDC Community guidelines.
  • For the safety and wellbeing of all online groups, members may not "block” any staff member of the SUDC Foundation on social media platforms. SUDC staff are all administrators of and moderate the groups and routinely review member lists. Any member who has blocked any SUDC Foundation staff member will be contacted to correct the situation and immediately removed from the group until the staff is unblocked.
  • Removal of posts and/or comments without notice is at the discretion of the group's moderators and administrators in support of the SUDC community guidelines. If you feel your post or comment was removed in error, please contact a moderator.
  • These are closed groups. Everything shared in these groups is confidential and is not to be shared with anyone. Reposting or sharing any participant’s correspondence without the participant’s permission is strictly prohibited. Participants’ personal stories may not be shared with anyone outside the group.
  • The SUDC Foundation makes every effort to verify the identities of group members. While you may use a pseudonym/nickname in the group, the group administrators will know the real identities of those in the group. There are no exceptions.
  • The online groups are for information and sharing regarding bereavement support, advocacy, research, and SUDC information only. Please post and comment relative to the subject of that group (ie., SUDC Family Support Facebook group for bereavement support topics, but SUDC Health and Science group for health and science related topics only).
  • Exercise caution with your private information (i.e. address, phone number, etc.). If you wish to provide your contact information to another participant, please do so privately. Participants may not use any contact information shared in these groups without the expressed permission of the other participant(s).
  • If you have a concern with a person or post in the group, seek recourse with the administrators. Blocking and/or reporting any member of the group through the platform’s settings may deprive them of access to the group experience and limits the ability for administrators to create a safe and open environment to support one another. Taking action to block and/or report another group member without consulting an administrator can result in your removal from SUDC Foundation online support services.
  • Members are not required or expected to “friend” or "follow" individual users/family members on social media platforms. If a member wishes to do so, s/he understands the risks involved and takes full responsibility for any impact. If another member does not wish to connect outside of the SUDC Foundation's online groups, members must respect the boundaries of their wishes.
  • The SUDC Foundation does not moderate private chats on any of our social media platforms and does not require or expect members to participate in private chats with other members; if a member is in crisis, they should NOT reach out staff or community members via private chat and should instead contact their local emergency services.
  • When sharing use "I" statements, such as "I feel," "I think," “In my experience,” etc. Be clear in describing your opinions versus facts. Comment and respond with honesty, kindness, and respect for the feelings of others. Please remember that all members are in varied points in their grief. Therefore, some topics may not be appropriate in these forums.
  • Bullying or inappropriate behavior of any kind to the SUDC Foundation, group administrators or members will not be tolerated this includes but is not limited to offensive language, sexual harassment, racial slurs and/or discriminatory language, excessive use of profanities, personal attacks and/or acting disrespectfully.
  • Discussion in online groups is often dominated by a small number of individuals. Remember that these are large groups, and you are speaking with many people. “Silence” does not signify “consent” or “agreement.” Silence may reflect discomfort or disinterest. Be respectful of the fact that many are here to listen and learn.
  • The SUDC Foundation wants to help all families understand their child’s death. As many families do not have clear answers, there is a great deal of speculation about possible causes. While all members of our community are entitled to their opinions, please be sensitive to others when you convey your particular beliefs. State your opinions as opinions and facts as facts to avoid misunderstandings. Speculation, even when made with good intentions, can cause a tremendous amount of guilt and anxiety for others.
  • The SUDC Foundation respects the beliefs of all members and espouses no specific religious, cultural, political, or philosophical ideology. Please feel free to discuss what beliefs may have helped you, but articulate they are your personal beliefs. Respect the beliefs and non-beliefs of others and do not challenge them. Sharing your experiences is often very helpful to others; however, you must be respectful of everyone’s beliefs, values, religion, or ideas.
  • If you find a helpful article or resource, please preface it in your message post so that members of the community can make an informed decision about whether or not they want to learn more.
  • Do not use the Foundation’s online groups for publicity, soliciting and/or advertising. All publicity, soliciting and/or advertising may be permitted in the online groups only with prior approval of the SUDC Foundation. Please do not post any chain letters, jokes, etc. that are not pertinent to SUDC. If you have an academic project you would like to share, contact a moderator for approval to share in the SUDC Foundation advocacy group.
  • The SUDC Foundation posts its guidelines on its online platforms and reserves the right to amend any as needed.
  • If you have any questions or concerns, please contact an SUDC moderator ([email protected] or [email protected])

Our efforts to raise awareness wouldn't be possible without the dedication and commitment of the SUDC community.

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