“What started as a small group of parents and scientists in 2001, has turned into an international network of families, medical professionals, researchers and death investigators collaborating to solve the most under-recognized medical mystery of our time. Today, we support over 1,000 families in more than 21 countries, advocate for the needs of our community and fund critical groundbreaking research to understand SUDC and help prevent it. The SUDC Foundation represents a community with many stories, but one shared voice, all working towards a future free of SUDC.”