Legislation & Policy

More Details on 2025's Efforts:

Legislative Day for Massachusetts:
March 3, 2025 for SUDC Awareness Month

State Representative James Arciero, in partnership with the SUDC Foundation and Junie’s Place, led the charge to support Massachusetts families affected by child loss. Representative Arciero hosted SUDC Awareness Day and introduced Bill H.2064, a vital bill that would provide 10 days of bereavement leave—a brief yet essential window of time—for families grieving the loss of a child. 

With March now officially recognized as SUDC Awareness Month in Massachusetts, we honor the 40 children gone too soon and the 62 Massachusetts family members forever impacted by Sudden Unexplained Death in Childhood (SUDC). By raising awareness and advocating for policies like Bill H.2064, we can ensure that families receive the dignity, time, and support they need to grieve and heal. Recognizing that bereavement leave is not just about policy—it is about compassion and acknowledging the lifelong impact of losing a child. 

We are grateful to Representative Arciero for his leadership in recognizing the importance of bereavement support and advocating for families who have experienced the unimaginable loss of their child. 

Click to Read In More Detail:

Legislative Day for Minnesota:
April 2, 2025 for SUDC Awareness Month

 Rare Disease Advocacy Day (hosted by the Minnesota Rare Disease Advisory Council)
 
The SUDC Foundation President, Julia Burgess and the Minnesota SUDC Community will be joining the Minnesota Rare Disease Advisory Council and community partners for Rare Disease Advocacy Day on Wednesday, April 2, 2025. 

Are you interested in policy change in your city, county, state or country?
Please contact us to help!

Skip to content