Advocate for Research
4 Ways We Advocate for Research
How We FUND Research
Through scientific research grants, such as those below, the SUDC Foundation improves our understanding of SUDC.
@ NYU Langone Health
Research Collaborative is supported by research grants($) from the SUDC Foundation as well as other sources
Directed By: Orrin Devinsky, MD
Purpose: To understand the risk factors of SUDC that enable the development of preventative strategies
Multidisciplinary research team members at NYU, Columbia University, Mayo Clinic, and independent Forensic Collaborators across the U.S. (Laura Gould Crandall= Research Scientist)
Approved by IRB of NYU Langone Health
National Consensus Guidelines
Grant funded to NAME
Collaboration between National Association of Medical Examiners (NAME) and American Academy of Pediatrics (AAP)
Birth to pre-pubescent children
Independent External Research
How We PERFORM Research
Internal Research
The SUDC Foundation performs research to better understand and advocate for the needs of families affected by sudden unexpected and unexplained deaths in childhood.
We utilize data collected by the SUDC Foundation to better understand and advocate for the needs of our community
This internal research does NOT investigate the causes of SUDC.
This research is performed by SUDC Foundation staff and volunteer researchers who have successfully completed the Collaborative Institutional Training Initiative for Biomedical Research.
How We ENDORSE Research
Related Research
We provide letters of support to endorse related research.
When researchers submit a grant application to another institution and may ask related stakeholder organizations or experts in the field to provide letter of support to be submitted with their application. This can be helpful in conveying to the grant agency how widespread the support is for the application.
Review and approval are the same as grant application review.
The SUDC Foundation has provided such letters of support for high quality research that is in line with our mission.
How We PARTICIPATE in Research
The SUDC Foundation
Member of National Association of Rare Disorders
Partners in the planning of medical conferences
Development of training and educational materials
Partners with related organizations
NIH Petition
Laura Gould Crandall
Co-Chair of OSAC Subcommittee on Medicolegal Death Investigation
Member of the Executive Board of the North American SUDEP Registry
Advances Through Related Research Advocacy Efforts
Personnel qualifications / certification / accreditations, FP supply, workplace standards etc.
